As tweeted about - CHRONIC PAIN
The following are tweets I did for someone with chronic pain - hope a few help! XX
@Ourchronicpain Remember despite #chronicpain ur a WHOLE person! Spouse need see u that way too! Ur MORE than ur pain but it CAN overshadow
@Ourchronicpain - when it comes to spouses remember they have limited capacity to understand your pain DESPITE loving you.
@Ourchronicpain - let your spouse know when you need an extra hug or help. They NOT mindreaders even if you think they *know* your issues
@Ourchronicpain -on GOOD days find the energy to get out with spouse for whatever you can manage - cinema, walk, Café etc. Brings positivity
@Ourchronicpain - When feel angry/upset with that devil called pain - thats when be kinder to your spouse *they more likely to support you!*
@Ourchronicpain -when feeling desperate about your pain rail against life, throw pillows, etc., if must but DONT take it out on your spouse
@Ourchronicpain Two-way street- ask spouse for reassurance they know you have profound pain. Then assure them you do what you can to get by
@Ourchronicpain - dont forget spouses also have stresses of life that they want support with. Listen to them when they need to offload
@Ourchronicpain - after major accident 5 yrs ago had 3 yrs of major ops & numerous procedures I'm LUCKY back on form & now do sports etc.
@Ourchronicpain 1st thing learnt from 24/7 pain No matter how much partner famly frends love u if not had serious pain can NEVER fully grasp
@Ourchronicpain Devise daily system communicate pain levels to loved 1s: I found 1-10 scale helpful: 1 = ok, 5 =bad but managing, 10 = worst
@Ourchronicpain Live 1-day-at-time basis! Stop negative beliefs that ALWAYS going to be bad. Focus on managing as best today STOP future anxiety
@Ourchronicpain Apart from near&dearest insist on talking about topics BESIDES pain! Avoid trap of always discussing = always on your mind
@Ourchronicpain Near&dearest must know when ur struggling with worst days but then also share OTHER stuff with them taking focus off pain!
@Ourchronicpain Accept u have unwelcome *devil* of pain How best can u live with them? Scrutinise ENTIRE routine to do things less painfully
@Ourchronicpain Pester doctors for any help, physiotherapy, etc. Don't let up - all sorts of things to try. Stay on top developments
@Ourchronicpain All pain patients diferent but ALL must embrace good days, get thru bad & make most what able to do. Partner tips next week